My heart goes out to you, Nora, as your post reminds me of the frantic state my husband and I were in following our daughter’s hypoxic brain injury–she was also 25 years old at the time. I remember the unbearable pain and I’m not surprised that you’re at your wit’s end with 3 other children who need your attention as well.
I know it doesn’t seem much but I’m impressed that your daughter has avoided chest infections and hasn’t needed a tracheotomy after coming off the ventilator. It’s wonderful that she sometimes responds to commands and that you’re able to push her around the grounds of the hospital. Our daughter is classed as ‘minimally conscious’, but she doesn’t respond to commands, has a trachestomy, and because the brain damage caused her spine to twist, she can’t be transferred into a wheelchair. As a result she hasn’t been outdoors since her brain injury in 2013, except for rare transfers to and from nursing home to hospital.
I sincerely hope your daughter will continue to improve and that you will find support for yourself.
Flo
