Welcome to Brain Injury is BIG, a support group for people who have loved ones with devastating brain injuries. They may be severely disabled, in a persistent vegetative state, minimally aware, conscious or locked in.
Brain Injury was BIG was started by Anne, Judy, Lois, Lynne and Sue. We came up with the idea when we got to know each other on the Devonshire Ward, Royal Hospital for Neuro-Disability in Putney back in 2009. We wanted to use our personal experiences to establish a network of families to help support each other. We’ve all experienced those early exhausting and frightening days in Intensive Care, when we didn’t really understand what was happening but we hoped for the best. We’ve all been through the struggles of finding suitable long term care, and the pressures that come from living with the situation year after year. Many of us will also have experienced the loss and grief when our loved ones have finally been taken from us by infection or pneumonia.
That’s what Brain injury is BIG is for, to provide emotional support over the telephone, on our online forum, on social media, and through regular meets ups. We can also provide financial assistance through our grant schemes, for travel costs to hospital, to put towards therapy sessions or necessary equipment. We’ve put our stories here so that you can see you’re not alone in the problems you’re experiencing. There’s lots of information and you can download a relative’s guide to impaired consciousness by Dr Martin Coleman.
When someone you love has this level of severe brain injury life changes for everybody in your family for ever. Don’t face it alone. We’re here to help.